Category Archives: Health

day 18

This is day 18 of our personal shelter in place. The actual order from the Bay Area health authorities came a couple of days later.

Whatever. We’re all in the same boat now, although it’s been interesting reading about the terrible conditions in the New York hospitals, the grocery and delivery workers attempts to get more respect and the places where denial is in power, while we eat our meals, nap, check FaceBook, read emails etc etc.

We’ve gone out for a couple of walks but cautiously. People have been out on the street walking. Some are in groups that may be families. Others perhaps not. I ordered some things online but kept the packages downstairs for a day before opening. Sepi is unhappy that I didn’t wipe them down first, but I did wash my hands immediately and was very careful about not touching my face while handling the boxes.

A friend of Sepi’s was at the grocery store last week and generously called us to offer to pick up what we needed. When she came by we had her leave everything at the bottom of the stairs. I started the cars the other day to make sure they still ran but they haven’t been driven since day 0.

Our pace is slow, but some things are getting done. I’ve long suspected our bathroom fan of not being hooked up right so yesterday I finally fixed it. It has a heating element that hadn’t been used. After I rewired it, I turned it on and it started to smoke. It wasn’t as clean as I thought! I took it apart again and spent a half hour cleaning it with tweezers and compressed air. All told it was a 2+ hour job. Hey, I’ve got nothing but time! Best of all, I didn’t have to go to the hardware store.

social distance

. . .  and self isolation.

Phrases that I didn’t expect to be using to describe myself until very recently. Two weeks ago I was buying travel supplies at the drugstore, getting a haircut, and getting serious about what clothes to take on the tour.

Then, just before the show on Friday the 6th came word that the SF Performing Arts complex was going to be closed to the public starting the next day. The Ballet had a show scheduled at the Opera House. Cancelled. The Symphony was scheduled to perform at UC Davis. That went on but our performances for the next week were not going to happen.

The original announcement only – now I say ‘only’! – was for a closure of two weeks, until the 20th. Tuesday morning the announcement was made to the orchestra that we weren’t going to Europe because several venues there had closed due to the virus. New York’s Carnegie Hall was still open, though, so we continued rehearsals. The ban on public assemblies in San Francisco was extended first one more week, then two more still.

Thursday morning’s rehearsal became an orchestra meeting. Everyone put away their instruments. The official word came: New York was closing too. We weren’t going anywhere. The entire Symphony administration was being told to work from home. Orchestra committees had hurried meetings with management about what to do. It was decided that we would all go on vacation for 4 weeks, until April 11. That’s when we would have come back from Europe. Rehearsals and performances were in the pipeline.

Vacation is not the right word for what we are doing now: social distancing, and self isolating. At first, I thought that Sepi and I could use the time to get in our car and drive to LA, or Colorado, or Washington where we could visit friends and family. After some reflection we realized what self isolation really meant: stay home!

I was all set (in my mind) to go down to Mom’s and hang with her for a couple of days but that was nixed. Mom’s in the most vulnerable group! We don’t know if we’ve been exposed!

In Seattle, the orchestra there is performing for an empty hall and streaming the music to the public. In San Francisco we can’t even do that because the ban is for assemblies of 100 or more. Maybe we could do Mozart . . .

And the ban is now extended to April 30th. We have no more ‘vacation’ left. Will we still get paid? Big conventions, which are the bread and butter for many of my Local 16 brothers and sisters, have disappeared. Those people have nothing. A few hundred dollars a week from unemployment.

I will try to write about more uplifting things in the days to come but that is the environment.

183

That’s been my pretty stable weight for a month or so now. Last fall beat me up. I was so busy at work, I often didn’t have time to eat properly and when I did, I often wasn’t hungry.

So, I lost weight. Normally that would be a good thing and in fact I feel better now. The stress has lessened a bit. It’s not the ideal way to get it done, but . . . it’s done. I hope I can keep it where it is.

I had my annual physical yesterday and my BP was good: 120/79. That’s more or less what it’s been for the past couple of years. The doctor’s weight numbers run a little high because I have clothes on but my records show that two years ago I came in at 210. Yesterday they showed me at 187. That’s a big win.

I didn’t get my blood work done before the doctor visit so that data is still to come.

24

My mother was about two weeks short of her 24th birthday on the day I was born. My father was about a month from his 25th. Whenever I’ve compared my age to theirs, it’s always been 24 years that I’ve used.

Now Dad is dead. The age comparison, facile as it is, surfaces again. What will my next 24 years be like? I made a bucket list once but I don’t remember where it got to. Should I do another one?

Mom is in relatively good heath. It seems likely that she will survive beyond the next year. What then for my facile comparisons?

I have the daytime off today but must go to work in a couple of hours. I had some ideas this morning of what I could do today but almost none of them have gotten done. I see parallels.

Sepi and I have been talking about taking a trip to Colorado to see Abe and May. I only met them at the wedding and thought they were very nice people. I would like to get to know them better.

It’s possible Mom may come with us and we would all go up to Denver to inter Dad’s ashes there. Sepi and I want to go visit Jeremy and Ashley at their new house. That might be a separate trip or it could be a big circle. The big circle implies two weeks on the road. Do any other sibs want to be in Denver for the interment? When can they get away? Does Mom want to go with us to Washington? Do Jeremy and Ashley want to have such a mob?

All last fall, Sepi and I talked about a honeymoon to Europe in the spring. That would be a minimum two weeks but a month would be better. When can we actually do that? Can we really afford it?

At a certain point, this is all rationalization. Seize the day!

Yes, but in reality we aren’t going anywhere for at least a couple of months. Work tonight, then a couple of days off. Band Monday, dentist Tuesday. The drumbeat of life goes on.

Work this week has been preparing for SoundBox. We opened last night. It was a fairly easy show for sound so I had plenty of time to think about what I was doing there. There are some reasons to give it up but there probably wouldn’t be backsies if I did. It can be freaking awesome. Denise floated an idea the other day that would change my role yet still keep me involved. I’m not sure if, a) I want to do it, b) the symphony would go along, or c) it would work even if the first two conditions were met.

Things to think about.

Dad

The other news this new year is about Dad. The week before Thanksgiving he was out with Mom and tried to get out of the car on his own and fell. Mom had gone into the store with the understanding – her understanding – that Dad would wait for her.

It was a perfect example of how we are all living in the past to some extent with Dad. He thought – as near as we could later find out – that he was to go in as well. He got out of the car and promptly fell. A passer by saw him and called 911. His injuries were not severe but in the course of examination at the ER, a chest X-ray was taken revealing a golf ball sized ‘mass’ in his lung.

Normally a biopsy would be conducted to verify what this ‘mass’ was but neither Dad nor any other member of the family was in favor of it. It would be very stressful and the likelihood was that it would in fact be cancerous. That begged the question of what would be the next step. Surgery, radiation, or chemo? No, the consensus was to let it go.

At the same time, the doctors said there were some ‘abnormalities’ in his blood work. My own view of the progression of information was a bit skewed as I was busy working during those first days but about a week later I asked Mom what she had been told.

Leukemia.

The doctors recommended we begin hospice care. It took a while for me to figure out what this exactly means. Evidently, this implies that life expectancy is 6 months. Kaiser brought a hospital bed and some medicines and supplies to the house but the extra care Mom needed was not part of the deal. She had to call providers and set up a schedule.

Of course all of the children were involved in all of this. My own help was minimal but all of my siblings made major contributions to the changes. Teresa, Mary and Tim are in the medical field in various ways and were able to understand what the doctors were saying. We all came to the house and filled in the cracks of care.

Mom has gone from having help 4 hours a day 3 days a week to 12 hours a day 5 days a week. Only a small part of the cost is covered by insurance. To save money, we sibs have promised to cover the weekends.

Dad’s only indication that he is in pain is when he is being moved out of the bed. He doesn’t say anything but we notice the strain in his face. As far as I know the only medication he is taking is a stool softener. He still uses the walker to get down the hall to the living room. He likes to watch football on TV. He eats meals in the dining room. He listens to the conversation around him and occasionally tries to say something but he cannot construct sentences any more.

Mom had his favorite priest come and say Mass for him. He also got the Sacrament of the Sick. I believe this is the same as what we used to call Extreme Unction, or Last Rites. Mary actually got him out to Church on Christmas Eve which he enjoyed.

As for the future, death awaits us all. Dad is likely closer than the rest of us. We are doing our best to make his remaining days as comfortable as possible.

at Mom and Dad’s

I came down here yesterday because Mom had an issue with vertigo and was going to the doctor. I had the day off and didn’t want her to drive if it could be avoided.

The doctor said basically that there was nothing to be done about the vertigo except rest. Mom had taken some expired medicine she had for sea sickness and thought it had helped but the doc said no, don’t do that.

Anyway, she’s better now. She has an appointment with her dentist this morning to put a permanent crown on so I decided to stay and drive her there as well. Her original plan was to drive up to Jane’s tonight for a Pampered Chef party which worried me. Last night, though, she decided she was not going to go so I feel better.

The weather was warm yesterday, in the 80s, and it reminded me of the air conditioning battle I had waged and lost six months ago. It’s a little after 7 now and I’ve been up for about an hour. It’s beautiful outside but it promises to be warm again today. Mom and Dad close their house up tight every night religiously so this morning the first thing I did was go around and open up some windows and doors. (I had the window wide open in my bedroom.) The temperature in the house has gone from 73 down to 71 in that time. All the fans that were running last night were shut off during the night.

When I lived in Grass Valley, we would set the fans in the wide open windows running full blast at night. The house would be almost too cool in the mornings but we would button everything up by 8 or so including keeping the drapes closed and the house would stay at a reasonable temperature most of the day. I know Mom and Dad want their house to be secure but comfort is a thing too. I am going to try to convince them that there are not burglars going through the neighborhood every night looking for open windows.

Mom did say last night that she will be proactive about going to the library or the movies (for air conditioning) if it gets really hot. I’ve been in my coastal cocoon lately so it was good to get a reminder that it’s summer time in Santa Clara. I’ll watch the weather more carefully.

Jane is finished with school as of tomorrow so she’ll be able to come down more easily for a while.

199

I hit 199 on the scale a week or so ago but back slid up into the 200’s again. Today it was back at 199. I’ll keep trying. My records show that I was consistently around 180 in the 1990s. I know, that was 25 years ago, but it isn’t like it was my high school weight (165!).  Sepi has me eating better. I’m not exercising besides walking a lot when I’m working. And I’m not working that much . . .

Goals!

sick

Sick. I’ve been sick. I’m pretty sure it’s just a head cold, but it has kept me low for almost a whole week now. Sunday I wrote in a post that I had a headache. That’s not uncommon but Monday it came back and it wouldn’t go away throughout a nice Christmas Day at Mom and Dad’s. Sarah had been at Jane’s Sunday night decorating cookies so I went over and did some. Here are our results:

Sarah came and stayed at my place Sunday night. Monday it was the two of us plus Rose in my car going down to Santa Clara. Jane and Joe and Jack came down. Mary was already there since Saturday. Teresa was there until about 2 when she had to go to work. Julian and Lisa came down but they were sick and didn’t stay long.

My headache never went away, despite some rather frenzied applications of medicine: ibuprofen, excedrin. maxalt – nothing worked. The next day I was torched. I stayed in bed pretty much all day and night. The headaches were under control but I was extremely tired. I did check my temperature but there was no fever. Wednesday I was going to go back down to Santa Clara and stay overnight but I knew I couldn’t do that nor did I want to expose Mom and Dad. Jane called me and said she would drive me down just for a couple of hours. It was Dad’s birthday. Jane got him to agree to walk over to the new visitor center at ‘Apple Park’. That was nice. the weather was perfect.Cool but sunny.

Yesterday I felt better and got out to do some grocery shopping. In the afternoon, I went to take a nap but actually felt pretty good so I got up. I still went to bed about 7 as I had every other night starting Tuesday. By now the fatigue wasn’t so bad but the constant stuffiness in my head along with the coughing and runny nose. I take Afrin at night so I can breathe but try really hard not to take any decongestant during the daylight hours. Sometimes I think the Afrin works a little too well, creating a direct path for the cold air to blast through my sinuses to the back of my throat, where there is a tender spot from the post nasal drip.

Well, today I went to work and did ok. Luckily just an 8 hour day and no one was in the building but Tim W and me. Tim put up with my sniffles. I didn’t get too close. Now it’s almost 8 and I’m heading to bed.

One last thing. Mary got this picture of Dad on Christmas Day as he was taking all the torn up wrapping paper out to recycling. He’s still got his sense of humor!

musings

I see that it’s been a week since I went out of my norm and posted on a political theme. The hope I felt only a week ago has been dashed by the passage of the Republicans’ ‘tax reform’ bill. As a side not, I put ‘hope’ in my tag window for this post and saw that it’s the first time I’ve tagged that word. That’s pretty sad that I haven’t written about hope in 18 months of this blog.

I’ve written about goals, which are kind of like hope, I think. One implies the other, although I’m not sure which would come first.

I’m going down to stay with Mom and Dad today. Just one night then home again tomorrow night. Work on Saturday then back down to Santa Clara on Monday, Christmas Day. I believe we’ll have 13 for dinner. That’ll be nice. Tim shared with his siblings the birthday card Mom and Dad sent him last week. Dad wrote on it, which is not common any more, but it was somewhat disjointed. He referred to his having ‘half a brain’. I told Tim that that was the worst of what is happening to him: he knows. It won’t get better so, to me, that means treasuring what we can when we can. Thus, I visit as often as possible.

At work, I’ve been trying to develop relationships with people outside my norm. I try to take time to have real honest talk with some of the Davies Hall ushers, with some of the Symphony staff. Everyone is at work, so we all recognize that is our priority but there are private moments. Working primarily in the front of the house, I hardly have any contact with the musicians any more. The last three or four shows I’ve done, Sarah was playing but I didn’t have time to get back stage at the right moment to talk to her. It’s been extremely hard for me to get out and do things not work or family related.

low

Thursday morning, I had an idea for a nice post. I took my laundry down to the laundry room and the sun was coming in low through the foliage in our little central patio/garden. It was very pretty. When I got back upstairs, I sat at the computer to write, but I saw I had a bunch of emails. I looked through those and answered a couple and the moment was gone. I slid into FaceBook and the news of the thievery in the Senate and the sunshine meant nothing any more.

I had been thinking I would go down to Mom and Dad’s later and stay overnight but I found myself sinking further and further into torpor. I tried to come back to write, but I couldn’t. I couldn’t pick up the phone to call anyone. Eventually, I got out to the mall where I wandered around – hardly anyone was there – looking at stuff I wasn’t interested in. I had some vague idea I could do some Christmas shopping. I did get a couple of things at the drugstore and got to the grocery store.

At home about 6 pm, I ate several bowls of sugar cereal for dinner and went to bed.

Friday was much the same, only I never went out. I checked FaceBook, played solitaire, worked on the jigsaw puzzle, actually read some real books (oh, I got to the library Thursday). In the evening, I saw Rose was home so I went over to talk to her. She was working on some Christmas decorations and had a kind of technical problem so I gave her some ideas and then some tools (skinny pliers). Somehow that made me feel better. I ate a decent dinner and again went to bed early, about 8.

Today brought the news that the Senate actually passed that abomination of ‘tax reform’ but I feel a little better. Better enough to write.

It’s interesting. I want to write deep, important thoughts, but often when I’m thinking those thoughts, I don’t want to sit at the computer. Certainly the last two days were like that.

I’ve got the day off so I will try to get back to my sunny thoughts of Thursday morning and share them with you.