Tag Archives: Kaiser

Dad

The other news this new year is about Dad. The week before Thanksgiving he was out with Mom and tried to get out of the car on his own and fell. Mom had gone into the store with the understanding – her understanding – that Dad would wait for her.

It was a perfect example of how we are all living in the past to some extent with Dad. He thought – as near as we could later find out – that he was to go in as well. He got out of the car and promptly fell. A passer by saw him and called 911. His injuries were not severe but in the course of examination at the ER, a chest X-ray was taken revealing a golf ball sized ‘mass’ in his lung.

Normally a biopsy would be conducted to verify what this ‘mass’ was but neither Dad nor any other member of the family was in favor of it. It would be very stressful and the likelihood was that it would in fact be cancerous. That begged the question of what would be the next step. Surgery, radiation, or chemo? No, the consensus was to let it go.

At the same time, the doctors said there were some ‘abnormalities’ in his blood work. My own view of the progression of information was a bit skewed as I was busy working during those first days but about a week later I asked Mom what she had been told.

Leukemia.

The doctors recommended we begin hospice care. It took a while for me to figure out what this exactly means. Evidently, this implies that life expectancy is 6 months. Kaiser brought a hospital bed and some medicines and supplies to the house but the extra care Mom needed was not part of the deal. She had to call providers and set up a schedule.

Of course all of the children were involved in all of this. My own help was minimal but all of my siblings made major contributions to the changes. Teresa, Mary and Tim are in the medical field in various ways and were able to understand what the doctors were saying. We all came to the house and filled in the cracks of care.

Mom has gone from having help 4 hours a day 3 days a week to 12 hours a day 5 days a week. Only a small part of the cost is covered by insurance. To save money, we sibs have promised to cover the weekends.

Dad’s only indication that he is in pain is when he is being moved out of the bed. He doesn’t say anything but we notice the strain in his face. As far as I know the only medication he is taking is a stool softener. He still uses the walker to get down the hall to the living room. He likes to watch football on TV. He eats meals in the dining room. He listens to the conversation around him and occasionally tries to say something but he cannot construct sentences any more.

Mom had his favorite priest come and say Mass for him. He also got the Sacrament of the Sick. I believe this is the same as what we used to call Extreme Unction, or Last Rites. Mary actually got him out to Church on Christmas Eve which he enjoyed.

As for the future, death awaits us all. Dad is likely closer than the rest of us. We are doing our best to make his remaining days as comfortable as possible.

Mom and Dad

I went down to Mom and Dad’s today. Originally I was going to see them this weekend for a birthday party but now the party is happening Saturday when I have to work. Happy Birthday Jim and Teresa! And Happy Birthday to Connor on Monday!

So, it was kind of an old-fashioned day for us, like the ones we used to have (seemingly) all the time before 2015. The only difference was that they had to go to a funeral and didn’t get home until one pm. Normally, I got there at noon or 12:30 for lunch and stayed through dinner. Today wasn’t much different: I ran a couple of errands on the way down and got to their house a little after 1.

We had a leisurely lunch and sat around the table in the sun room talking for over an hour. Before the funeral mass, they had gone to their exercise class so they were pretty tired. About 2:30 they went in to take a nap and I went to the computer to work on their taxes. Actually, their taxes are done. What I’m doing is running the numbers through Turbo Tax to see if there are trouble spots with an eye towards doing the taxes for them myself next year. It doesn’t appear that the tax guy is putting in any kind of special sauce for his $500 so now all I have to do is convince Dad to let me do it.

After a while, Mom came out and started working on her genealogy program. She determined that she isn’t keeping up with the various families as much as she wants to. Then she looked into a letter she had gotten from the Kaiser people about her password. She got that fixed then asked me about downloading Dad’s health record. Pretty cool! We got it done, then for good measure downloaded hers as well. Now they’re resident on her computer in PDF form.

About then Dad was up and got the News Hour started on the TV. It usually drives me crazy but today it was fairly reasonable. They had a long story about the Great Barrier Reef dying off because the ocean temperatures are rising. They also had a pretty balanced panel commenting on the Supreme Court vacancy hearing today.

Then it was time for dinner and Jeopardy, followed by Wheel of Fortune. Tradition!

I usually leave right after dinner because I’m tired and I don’t want to get involved in the evening TV watching. Tonight I was getting my things together when their friend Chacko called. Chacko is part of the 10 am community at the Mission and a regular on Thursday afternoons at the coffee shop. He’s at least 10 or 15 years younger than most of the Thursday crew but he was calling to tell them his back has gone out and he won’t be going tomorrow. He apologized for missing the funeral Mass too. We all commiserated, then he signed off and I headed out. My father said, as he often does, ‘Drive with care, everywhere!’