Monthly Archives: January 2019

Norm

I met a lot of new people last spring as Sepi and I were beginning our life together. One of them was Norm. Norm was married to a woman who had been City Manager when Sepi was Mayor.

Norm’s posture was quite stooped over in a way that reminded me of Dad so I started to talk to him about it. Unlike Dad’s, his condition had come up rather suddenly the previous fall. As recently as a year previous, he had been in robust health and was quite active.

I don’t remember if he knew at the time what it was. More likely he just didn’t tell me that it was ALS.

Norm died last week.

I only saw Norm one other time. It was at a birthday party a few weeks later. In that short time he had deteriorated markedly. He was having great difficulty holding his head up and speaking. In that first conversation, though, we bonded in a mysterious way. When Sepi shared the news of Norm’s death with me, I got choked up in a way that I didn’t with Dad.

Sepi talked to Robin yesterday. She said Robin told her how Norm had read my blog regularly and how much he had enjoyed it.

Thank you, Norm! Your friendship was brief but brilliant. Rest in Peace.

Dad’s passage

Dad died yesterday morning. He hadn’t eaten nor taken water for several days so it was not unexpected. At some level, we are all relieved. The phrase I used on FaceBook was ‘His torment is over.’

‘Torment’ might be a bit overstated. He never complained of pain, although in truth his ability to communicate was pretty much entirely gone. He would sometimes react to our attempts to move him by making a grunt of pain. Towards the end of last week he was not sleeping well and twitching a lot.

‘Torment’ could also be applied to Mom’s experience. It was bad enough to be losing her husband of nearly 66 years but her home was being invaded by not only her children but her children’s spouses, hospice nurses and technicians and other helpers and visitors. She will have to endure that for a while longer – ten of us were there yesterday – but hopefully she will be able to sleep better. We’re back to the dilemma we had with Dad: how do we respect their independence yet give them help when needed? This is especially difficult when they say they don’t want the help.

So, we muddle through as always. We do it for love, which helps.

Mom called me at about 5 with the news. The phone ringing woke me from a deep sleep and my original reaction was irritation. I had been getting a lot of sales calls lately so that was my first thought. When I saw ‘Mom’ on the phone, though, I knew what it was about.

We got down to Santa Clara about 7. Tom and Mary Lou had been staying over so they had been with Mom. The hospice nurse had come over right away and done some minimal clean up. He was lying in the bed as he had been but he was still. His mouth had a slight smile, we all thought.

Teresa and Jane got there a little later. Teresa wanted to clean him more thoroughly so she did that. Mom and Dad had made arrangements long ago with Trident for cremation and they were coming at ten so we all took some time before that for reflection and community.

The Trident people were respectful but professional. They were in and out of the house in less than ten minutes. We were left with memories only.

So the rest of the day was about memories. Mary got there about 1. Julian and Lisa came. Sarah came. We all sat around and ate and reminisced. We talked about funeral arrangements and other quotidian things. There were some tears but a lot of laughter.

death watch

I’ve had this title in my mind for a couple of weeks now. Like many other things, I’ve seen it before but now I am experiencing it. It’s strange that after a lifetime of trying to preserve health – holding death at bay, as it were – we are allowing death to have its way. It’s also strange that I am personifying death. That’s what humans do, though, to try to understand what is fundamentally not understandable.

Well, anyway, death came to Dad yesterday morning. I’m going to try make a separate post about that. This is a snippet I wrote on my phone Sunday that speaks to the watch part.

It’s Sunday January 20th and the family is gathering at Mom and Dad’s to celebrate Sarah and Jack’s birthdays. Dad is at the end, though. He hasn’t had any food for several days and very little water. Teresa and Mom gave him a small dose of morphine this morning. Previously the heaviest pain medication was Tylenol. He had been very restless the 24 hours previously. He was sleeping soundly when Sepi and I got here about 12:30. He woke up a little about 1. He seemed to recognize Mary and tried to respond to her. Now (2 pm) he’s sleeping again but his breathing is labored. He sort of half clears his throat every minute or so. Mom was sitting with him but I relieved her so she could eat lunch. Mom went to the church yesterday to make arrangements for the funeral Mass and reception. She is definitely ready for this to be over.

Dad

The other news this new year is about Dad. The week before Thanksgiving he was out with Mom and tried to get out of the car on his own and fell. Mom had gone into the store with the understanding – her understanding – that Dad would wait for her.

It was a perfect example of how we are all living in the past to some extent with Dad. He thought – as near as we could later find out – that he was to go in as well. He got out of the car and promptly fell. A passer by saw him and called 911. His injuries were not severe but in the course of examination at the ER, a chest X-ray was taken revealing a golf ball sized ‘mass’ in his lung.

Normally a biopsy would be conducted to verify what this ‘mass’ was but neither Dad nor any other member of the family was in favor of it. It would be very stressful and the likelihood was that it would in fact be cancerous. That begged the question of what would be the next step. Surgery, radiation, or chemo? No, the consensus was to let it go.

At the same time, the doctors said there were some ‘abnormalities’ in his blood work. My own view of the progression of information was a bit skewed as I was busy working during those first days but about a week later I asked Mom what she had been told.

Leukemia.

The doctors recommended we begin hospice care. It took a while for me to figure out what this exactly means. Evidently, this implies that life expectancy is 6 months. Kaiser brought a hospital bed and some medicines and supplies to the house but the extra care Mom needed was not part of the deal. She had to call providers and set up a schedule.

Of course all of the children were involved in all of this. My own help was minimal but all of my siblings made major contributions to the changes. Teresa, Mary and Tim are in the medical field in various ways and were able to understand what the doctors were saying. We all came to the house and filled in the cracks of care.

Mom has gone from having help 4 hours a day 3 days a week to 12 hours a day 5 days a week. Only a small part of the cost is covered by insurance. To save money, we sibs have promised to cover the weekends.

Dad’s only indication that he is in pain is when he is being moved out of the bed. He doesn’t say anything but we notice the strain in his face. As far as I know the only medication he is taking is a stool softener. He still uses the walker to get down the hall to the living room. He likes to watch football on TV. He eats meals in the dining room. He listens to the conversation around him and occasionally tries to say something but he cannot construct sentences any more.

Mom had his favorite priest come and say Mass for him. He also got the Sacrament of the Sick. I believe this is the same as what we used to call Extreme Unction, or Last Rites. Mary actually got him out to Church on Christmas Eve which he enjoyed.

As for the future, death awaits us all. Dad is likely closer than the rest of us. We are doing our best to make his remaining days as comfortable as possible.

news

Why haven’t there been more postings this past fall, you may ask? Some of the issues after the wedding I’ve already written about. My boss at Davies took a 4 1/2 week vacation and I was the principal relief. Then December, always busy at Davies, happened.

The biggest reason, though, is the water leak we had on our kitchen on Nov 12th. The poly line from the sink to the refrigerator burst. Sepi was home and was able to turn off the water but the flooring around the refrigerator was soaked.

She called the insurance and the mitigators came with large fans and a dehumidifier that ran day and night. They put up a big tent arrangement around the kitchen area. There was a big zipper for the only entrance/exit. Around this time was the fire near Oroville that sent heavy smoke into the Bay Area so we couldn’t open our windows.

After a few days of this, Sepi called the insurance and told them that we couldn’t live under those conditions. They agreed and we moved out to a local hotel.

In some ways it was nice, but it was not good for writing in blogs. I only access this blog from my desktop computer at home and now I was only in the house for a few minutes at a time.

So, that’s the main reason. As of three days ago, we are back sleeping in our home. The kitchen is repaired. We are still looking through boxes and putting things away. Work has slowed just a bit. I had two days off this week.

a new year

Well. Since the beginning of September, I find I have written only 5 posts on this blog. That’s four months, for those of you scoring at home. I will do better this year.

I think about writing often, though. Usually, it’s while driving to work. Since moving to Brisbane I’ve been taking a SAMTRANS bus into town some of the time. I get off at Mission and Ninth and walk the four blocks to Davies. At Van Ness, I usually have to wait for the light to cross. Cars and trucks whiz past seemingly at only an arm’s length away.

How fast are they going?, I think. 40 miles an hour? 50 miles an hour? 53? Sometimes I think about how it would feel if one of them swerved and hit me. I usually stand behind the traffic light pole just in case. The sidewalk is not very wide at that particular spot. I look at the drivers’ faces as the speed past. Often they are hunched over the steering wheels. Their tension is evident. Where are they going in such a hurry? Work, mostly, I think.

I am fortunate in that there would be no bad consequences if I was late to work – once in a while. Like once or twice a year. I generally allow enough time to get to work calmly. No work is important enough to have an accident.

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