The other news this new year is about Dad. The week before Thanksgiving he was out with Mom and tried to get out of the car on his own and fell. Mom had gone into the store with the understanding – her understanding – that Dad would wait for her.
It was a perfect example of how we are all living in the past to some extent with Dad. He thought – as near as we could later find out – that he was to go in as well. He got out of the car and promptly fell. A passer by saw him and called 911. His injuries were not severe but in the course of examination at the ER, a chest X-ray was taken revealing a golf ball sized ‘mass’ in his lung.
Normally a biopsy would be conducted to verify what this ‘mass’ was but neither Dad nor any other member of the family was in favor of it. It would be very stressful and the likelihood was that it would in fact be cancerous. That begged the question of what would be the next step. Surgery, radiation, or chemo? No, the consensus was to let it go.
At the same time, the doctors said there were some ‘abnormalities’ in his blood work. My own view of the progression of information was a bit skewed as I was busy working during those first days but about a week later I asked Mom what she had been told.
Leukemia.
The doctors recommended we begin hospice care. It took a while for me to figure out what this exactly means. Evidently, this implies that life expectancy is 6 months. Kaiser brought a hospital bed and some medicines and supplies to the house but the extra care Mom needed was not part of the deal. She had to call providers and set up a schedule.
Of course all of the children were involved in all of this. My own help was minimal but all of my siblings made major contributions to the changes. Teresa, Mary and Tim are in the medical field in various ways and were able to understand what the doctors were saying. We all came to the house and filled in the cracks of care.
Mom has gone from having help 4 hours a day 3 days a week to 12 hours a day 5 days a week. Only a small part of the cost is covered by insurance. To save money, we sibs have promised to cover the weekends.
Dad’s only indication that he is in pain is when he is being moved out of the bed. He doesn’t say anything but we notice the strain in his face. As far as I know the only medication he is taking is a stool softener. He still uses the walker to get down the hall to the living room. He likes to watch football on TV. He eats meals in the dining room. He listens to the conversation around him and occasionally tries to say something but he cannot construct sentences any more.
Mom had his favorite priest come and say Mass for him. He also got the Sacrament of the Sick. I believe this is the same as what we used to call Extreme Unction, or Last Rites. Mary actually got him out to Church on Christmas Eve which he enjoyed.
As for the future, death awaits us all. Dad is likely closer than the rest of us. We are doing our best to make his remaining days as comfortable as possible.